10.5.2015 – Cystic Fibrosis Breath of Life Gala

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This weekend is one that will go down in the record books of my life! As I’ve said before I spend a lot of my “free” time volunteering with the Cystic Fibrosis Foundation. This Friday, was their annual Breath of Life Gala. I had the honor of volunteering, as well as attend with so many people that were there to support this cause that is so near and dear to my heart. Just being able to sit back and listen to Dr. Harvey speak about the advances made from these very donation dollars gave me goosebumps. Being part of celebrating Celia Palmer’s 10 incredible years of service as Director of the Oklahoma City Chapter of the CF Foundation was so special. Plus, we were able to raise a glass to winning a “round”. This year, Orkambi was approved by the FDA and is one of the most remarkable drugs for CF patients with the F508del/F508del mutation.

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I know that for some people, all of the CF talk is GREEK, so if you’d like I can do a post explaining a little more about it (with out going crazy.)

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Getting to be there with my wonderful friend and volunteer partner made it even better. We have made such an incredible team, and I couldn’t imagine going through all of this without your help and support!

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This is why I’m so passionate about a cure… My turtle, my best friend, my cousin/sister, my BEST FRIEND… She is 22 years old and is the strongest person I know!

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Find something you are passionate about, and help where you can. Someone, somewhere needs your talents and skills. No matter how big or how small. You can make a difference!

xoxo H

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